Bene's Buddies
Baby Benedict (Bene) Yusufani was born November 1, 2023. He had been diagnosed prenatally with fatal congenital heart defects and severe congenital neurological conditions arising from a tetrasomy on chromosome 22. Surgery for the congenital heart defects was not really feasible given the neurological diagnosis and as such, his family was advised that he was not expected to live very long after birth.
Bene lived 140 hours. His short life was filled with love from family, friends, neighbours, and the most compassionate and supportive health care staff. Those who loved him are so grateful for the kindness, generosity, and professional expertise of all those who accompanied them on this palliative care journey.
We're running on the 28th in honour of Bene, and to help raise funds for more pediatric palliative care training in Peterborough and the surrounding area.